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Adoptee Health Network
Resources List

Diagram

Inclusive Family Medical History-Taking Flowchart

Jade H. Wexler, Elizabeth Toll

Date:

Jan 28, 2025

Type:

Diagram

Tags:

Adoptee Health

Abstract/Summary

Utilize universal phrasing and a nonjudgmental approach to take family medical history in an inclusive and sensitive way for all patients.
Video

ICAV: Our Thoughts for Doctors

ICAV: Intercountry Adoptee Voices

Date:

Aug 2, 2021

Type:

Video

Tags:

Adoptee Health

Abstract/Summary

Intercountry adoptees share what they want doctors to understand about intercountry adoption.
Journal Article

A Qualitative Study of Primary Care Physicians’ Approaches to Caring for Adult Adopted Patients

Jade H. Wexler, Elizabeth Toll and Roberta E. Goldman

Date:

Jan 27, 2025

Type:

Journal Article

Tags:

Adoptee Health, Primary Care, Genetic Testing

Abstract/Summary

PURPOSE Adoption has lifelong health implications for 7.8 million adopted people and their families in the United States. The majority of adoptees have limited family medical history (LFMH). Primary care physicians (PCPs) rarely receive training about adoptees including their mental health needs and increased suicide risk. The growing availability and popularity of direct-to-consumer genetic testing kits amplifies the need for PCPs to be prepared to address genetic testing for adoptees with LFMH. This study explores PCP training and approaches to adult adopted patients with LFMH. METHODS We used critical adoption studies as a theoretical framework for this study to understand how adoptive identity might shape clinical experiences. We recruited PCPs from Minnesota and Rhode Island via purposive, criteria-based, reputational sampling. We conducted hour-long semistructured qualitative interviews incorporating hypothetical clinical vignettes. Transcripts were coded via template organizing method and analyzed via Immersion-Crystallization. RESULTS We interviewed 23 PCPs. They reported receiving little training or resources on adult adoptees with LFMH and showed substantial knowledge gaps regarding mental health and genetic testing for this population. Many failed to adjust history-taking and primary care approaches, which they recognized as potentially resulting in inaccuracies, inappropriate clinical care, and microaggressions while inadvertently triggering anxiety, shame, and distrust among patients. A mismatch between adopted patients’ and physicians’ understandings of family medical history could strain the therapeutic relationship. Nearly all interviewees viewed additional training to care for adult adoptees with LFMH as beneficial. CONCLUSION Future research should expand education and training for PCPs on adult adoptees with LFMH.
Journal Article

Risk of suicide attempt in adopted and nonadopted offspring

Keyes, Margaret A.
Malone, Stephen M.
Sharma, Anu
Iacono, William G.
McGue, Matt

Date:

Oct 1, 2013

Type:

Journal Article

Tags:

Adoptee Health

Abstract/Summary

OBJECTIVE: We asked whether adoption status represented a risk of suicide attempt for adopted and nonadopted offspring living in the United States. We also examined whether factors known to be associated with suicidal behavior would mediate the relationship between adoption status and suicide attempt. METHODS: Participants were drawn from the Sibling Interaction and Behavior Study, which included 692 adopted and 540 nonadopted offspring and was conducted at the University of Minnesota from 1998 to 2008. Adoptees were systematically ascertained from records of 3 large Minnesota adoption agencies; nonadoptees were ascertained from Minnesota birth records. Outcome measures were attempted suicide, reported by parent or offspring, and factors known to be associated with suicidal behavior including psychiatric disorder symptoms, personality traits, family environment, and academic disengagement. RESULTS: The odds of a reported suicide attempt were ~4 times greater in adoptees compared with nonadoptees (odds ratio: 4.23). After adjustment for factors associated with suicidal behavior, the odds of reporting a suicide attempt were reduced but remained significantly elevated (odds ratio: 3.70). CONCLUSIONS: The odds for reported suicide attempt are elevated in individuals who are adopted relative to those who are not adopted. The relationship between adoption status and suicide attempt is partially mediated by factors known to be associated with suicidal behavior. Continued study of the risk of suicide attempt in adopted offspring may inform the larger investigation of suicidality in all adolescents and young adults.
Journal Article

Adult adoptees and their use of direct‐to‐consumer genetic testing: Searching for family, searching for health

Lee, Heewon
Vogel, Rachel I.
LeRoy, Bonnie
Zierhut, Heather A.

Date:

May 13, 2020

Type:

Journal Article

Tags:

Adoptee Health, Genetic Testing

Abstract/Summary

Use of direct-to-consumer genetic testing (DTC-GT) is rapidly growing in the United States. Yet little is known about how specific populations like domestic and intercountry adoptees use DTC-GT. Adoptees often have little to no biological family history, which may affect how they use DTC-GT. This study aimed to examine adult adoptees' motivations to pursue DTC-GT, experiences completing a test, and reasons for not completing one. An online survey consisting of 41 closed-ended questions was distributed to domestic and intercountry adult adoptees in a snowball convenience method addressing seven areas: (a) demographics and adoption experience, (b) family health history, (c) familiarity with DTC-GT, (d) actual DTC-GT experience, (e) hypothetical DTC-GT experience, (f) health results, and (g) satisfaction with DTC-GT. Descriptive statistics were performed on participant demographics and adoption characteristics, and chi-squared and Fisher's exact tests compared demographics and adoption characteristics by familiarity with DTC-GT and completion of DTC-GT. A total of 117 adoptees met criteria and completed the survey. Adoptees were motivated to use DTC-GT to search for biological family (83.0%), verify race and ethnicity (72.3%), and find out where ancestors came from (66.0%). Most participants completed DTC-GT (80.3%); completion was significantly associated with searching for biological relatives (p

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